Glacier Gives Back... You can too!
Tuberous Sclerosis Complex (TSC) is a genetic condition characterized
by lesions of multiple organs including the brain, kidneys, eyes,
lungs, heart and skin. TSC causes a multitude of medical, developmental,
and behavioral challenges in those who are affected by it. Two-thirds
of individuals with TSC have no family history of the disease,
so it can strike any family, at any time. The worst part of having
TSC is that there is no cure… YET. In the US, at least 2
babies are born with TSC each day. This means that TSC affects
about 50,000 people in the Us and 1 million worldwide. TSC is a
leading known genetic cause of epilepsy and autism.
We are closer to a cure for TSC than we have ever thought we would
be in 2010. The progress that has been made in the scientific community
in the past few years has been phenomenal. Currently, there are
several human clinical trials going on which are testing the efficacy
of a certain class of drug in shrinking TSC tumors in the brain
and kidneys. In addition, new clinical trials are being planned
to see if the same drug would improve seizures and even cognitive
levels of persons with TSC! It's not about just helping the future
generations anymore! In addition, as researchers learn more about
this disease, they are finding out how finding a cure for TSC would
open doors to meaningful treatments for other conditions such as
epilepsy, autism, cancer and diabetes that afflict millions of
Americans.
"Every Child Deserves
the Chance to Play Baseball" The Miracle League
of Orange County, California is a baseball league for children
with disabilities.
The organization's mission is to:
- Promote community support and sponsorship of the Miracle League.
- Provide opportunities for children with disabilities to play
Miracle League baseball, regardless of their abilities.
- Promote
the construction of special facilities which meets the unique
needs of Miracle League players and their families.
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